The Lonely Reality of Avoiding Being Alone

Jess Thom (Tourettes hero) uses art to convey the amount of time and effort involved in managing her own support.

As someone who requires skilled support 24 hours a day I’m never really on my own – but if I am it’s because I’ve failed. Failed, that is, to meet my most basic need, the continuous presence of someone who can keep me safe, someone who can administer emergency medication if necessary, who can prevent friction burns from my repetitive movements, or who can turn me over so I can breathe.

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